I am happy to report that Jackson has been doing much better on his new medicine, Trazodone. He has been on it for a little over a week and so far it has helped him get sleep and sleep throughout the evening. We have also noticed it help prevent the constant head banging, although he will still bang his head on occasion usually when he isn’t getting his way. The other things we noticed are he is back to his happy morning self, his appetite is back, and he isn’t crabby all day. His therapists have noticed a difference too, he is more focused during his sessions. Today is National Fragile X awareness day so I thought I would take this time to share some of Jackson’s favorite things.
Jackson loves to play catch with me on the stairs. I have been throwing a ball at him since he was able to hold himself up in his bouncy contraption. He is starting to get really good at catching. We have all kinds of various balls for him, his favorite lights up as it bounces. He will sit at the top of stairs and toss the ball down to me. His loves to watch the ball bounce on each step to which I make silly sound effect noises. Then I toss the ball back up to him. It is so fun to watch.
Jackson also loves to watch Mickey Mouse Club House and Baby Einstein. They are on forever repeat in our house, even though he might only watch 10 -15 minutes at a time. He has always loved the Hot Dog song and dance, to which he recently started dancing along to. With the Baby Einstein videos his favorite toys to watch are the toys with balls or any spinny things. Recently he started noticing the wind up robots and when they are on he starts walking around like them. He also loves it when any of the Einstein kids are on. He just loves people…
Jackson is a huge fan of the swing. We installed a bar in his doorway to his bedroom several months ago and when he seems to be having a hard time swinging will calm him down. Last weekend I put together an outdoor swing-set and our little man is obsessed with it. Unfortunately St. Louis has been under a heat advisory since the day I put it up and if the humidity doesn’t get to you the mosquitoes might just carry you off. Jackson doesn’t seem to mind the heat one bit. He loves to ride in his radio flyer, stroller, or Cozy Coup. You can walk him forever in those things. The neighbors love to see him as much as he loves to see them. He will wave and flap his hands in excitement. When I get home from work I usually take him for a walk and sometimes after dinner. Lately with the heat we are only getting one walk in. His other outdoor favorite is the pool. Jackson loves the water and luckily Memaw Hamilton has a big pool that we can all get in. This love for water is great because we have no problems with bath time, except for the crazy splashing. Be prepared to be soaked if you ever have to give my son a bath..
Jackson could watch you push a vacuum for hours. Lately though just pushing it around isn’t enough, he has to have it on. He has figured out that the cord has to be plugged in, thank goodness for those plastic covers. We bought Jackson a mini-Dyson of his own for Christmas, but he prefers if you push it and not him. He is a smart child…
Jackson likes to watch people come and go from our house. I don’t know what it is, but he loves to watch people through the window. If a car goes by and he hears it, at the window you will find him. The neighbors across the street like coming home to see him knocking on the windows and waving away. You can see his big smile from across the street. It brings me great joy to see this every morning when I leave for work and when I come home. Speaking of cars, he has this awesome Fisher Price Speedway toy. The center of the floor spins and it has special cars that go on it. It has a ramp the cars go down into the center and the cars go around and around till they shoot through the finish line. It is a very loud toy, but he loves it. He has perfected balancing the cars on their rear bumper while the floor is spinning. I can’t even balance them on a flat surface.
Jackson loves music. He will pick a favorite song and want to listen to it over and over. Right now the favorite song is “If you are happy and you know it…”. He is also a big fan of the “Farmer and the Dell” and “Twinkle Twinkle Little Star”. I am not the vocalist of the house, but since he was born I have sang him to sleep.