WEBSITES
Your Genes Your Health: http://www.ygyh.org/ - Fragile X page
FRAXA Research Foundation: http://www.fraxa.org/
The National Fragile X Foundation: http://www.fragilex.org/
GeneTests: http://www.genetests.org/ - A publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons. Select “GeneReviews” do a search on FMR1 or FRAGILE X to pull up information on Fragile X.
FXTAS: http://www.fxtas.org/
Dr. Marcia Braden (behavioral expert): http://www.marciabraden.com/
Developmental FX: http://www.developmentalfx.org/
Your Genes Your Health: http://www.ygyh.org/ - Fragile X page
FRAXA Research Foundation: http://www.fraxa.org/
The National Fragile X Foundation: http://www.fragilex.org/
GeneTests: http://www.genetests.org/ - A publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons. Select “GeneReviews” do a search on FMR1 or FRAGILE X to pull up information on Fragile X.
FXTAS: http://www.fxtas.org/
Dr. Marcia Braden (behavioral expert): http://www.marciabraden.com/
Developmental FX: http://www.developmentalfx.org/
Fragile X Resource Center of Missouri first giving page that
hosts upcoming events: http://www.firstgiving.com/FXMO - The
Fragile X Resource Center of MO unites the local community to enrich lives
through educational and emotional support, promote public and professional
awareness, and support research toward improved treatments
and ultimately cures for Fragile X.
FACEBOOK GROUPS
Fragile X Resource Center of Missouri: https://www.facebook.com/pages/Fragile-X-Resource-Center-of-Missouri/118769471471901
Fantastically Fragile X - The FX Brag Room: https://www.facebook.com/groups/TheFXBragRoom/
Fragile X Advocates: https://www.facebook.com/groups/fxadvocates/
VIDEOS
First Down Towards a Cure: www.youtube.com/watch?v=BgcQi0bbaJQ
Fragile X - Hitting the mark: www.youtube.com/watch?v=-6-J_YcVRi4
Living with Fragile X – a documentary: http://www.livingwithfragilex.com/
WEB ARTICLES
News Week article – When Love is Not Enough
Time Article
– Fragile X: Unraveling Autism's Secrets:
http://www.time.com/time/magazine/article/0,9171,1818268,00.html
Time Article – A new approach to correcting autism:
http://www.time.com/time/health/article/0,8599,1696451,00.html
NY Times - Promise Seen in Drug for Retardation Syndrome:
www.nytimes.com/2010/04/30/health/research/30fragile.html?ref=research
http://www.time.com/time/magazine/article/0,9171,1818268,00.html
Time Article – A new approach to correcting autism:
http://www.time.com/time/health/article/0,8599,1696451,00.html
NY Times - Promise Seen in Drug for Retardation Syndrome:
www.nytimes.com/2010/04/30/health/research/30fragile.html?ref=research
About.com Mens health article –
Fragile X Chromosomal disorder affecting mainly men
http://menshealth.about.com/cs/genetics/a/Fragile_X.htm
ONLINE SUPPORT/FORUMS
FRAXA Listserv:
To Join: Send email from your email address to LISTSERV@LISTSERV.CC.EMORY.EDU
In the body of your message type: SUBSCRIBE FRAGILEX-L myname (“myname” is whatever name you want to appear as the “from name” on your Listserv postings. Type it in the way you want it to appear in upper/lower case letters.)
My Fragile X Community (The National Fragile X Foundation): http://my.fragilex.org/forum
FXTAS Yahoo Group: http://health.groups.yahoo.com/group/FXTAS/
MEDICATIONS
Advances in the treatment of Fragile X Syndrome: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2888470
Medication Guide for Fragile X: http://drmikespsychiatryblog.blogspot.com/
RESEARCH
Seaside Therapeutics: http://www.seasidetherapeutics.com/
Clinical Trials: http://www.clinicaltrials.gov/
The Fragile X Research Registry: http://www.fragilexregistry.org/
This page is still under construction. There is always room for more resources...
ONLINE SUPPORT/FORUMS
FRAXA Listserv:
To Join: Send email from your email address to LISTSERV@LISTSERV.CC.EMORY.EDU
In the body of your message type: SUBSCRIBE FRAGILEX-L myname (“myname” is whatever name you want to appear as the “from name” on your Listserv postings. Type it in the way you want it to appear in upper/lower case letters.)
My Fragile X Community (The National Fragile X Foundation): http://my.fragilex.org/forum
FXTAS Yahoo Group: http://health.groups.yahoo.com/group/FXTAS/
MEDICATIONS
Advances in the treatment of Fragile X Syndrome: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2888470
Medication Guide for Fragile X: http://drmikespsychiatryblog.blogspot.com/
RESEARCH
Seaside Therapeutics: http://www.seasidetherapeutics.com/
Clinical Trials: http://www.clinicaltrials.gov/
The Fragile X Research Registry: http://www.fragilexregistry.org/
This page is still under construction. There is always room for more resources...
